Monday Oct?? Is it even Monday??

None of us know what day it is or what time it is; nevertheless, I think we are nearing the end of day 3. Steph continues to do well off the vent. She has her NG tube in and she is being fed though that for now. She had a swallow study done today and she choked a little when she tried to drink thin liquid....so....thickened liquids it is for now...Yuck! We found out that she hates vanilla pudding. Come on she's female, doesn't everyone know by now that you should only put chocolate in front of a female when there is a choice between chocolate and vanilla? She will repeat her swallow study tomorrow. Hopefully she will pass because she is asking for water or anything to clear her mouth. She sleeps with her suction tube close and still has a hard time coughing up all of her secretions - but she can do it.

She is complaining of a headache - go figure - she is still missing a piece of her skull. We finally talked he into taking a little morphine. She is worried about the effects of medication on the fetus. She worries about being nauseated. She worries - I guess I should be thankful for that, but I don't want her to be in so much pain she cant rest. It is sounding like a week from Friday she is scheduled to have that piece of skull replaced. It is still amazing to me that a person can be without a whole piece of their skull for 6 months or so. Every alarm or sound that room makes freaks us all out. I think I will stick to being a nursery nurse. Is not having a piece of your skull somewhat like a soft-spot on a baby's head??? Hmmmmm

I brought her nurses some chocolate today. Steph smiled when I told her and said we should do whatever we need to do so they continue to take special care of her. LOL. She knows she is being very well cared for.

I witnessed her left arm raise all the way up to her head. YEAH!!!!!!!!!!!!!!!!!!

I witnessed her completely lift her left leg entirely off her bed. YEAH!!!!!!!!!!!!

She repositions herself fairly well, but she said "I can't wait to get out of this bed" It sound like Physical Therapy / Occupational Therapy will start tomorrow. That should be interesting. She gets irritated now, but I know she will like moving around. I just hope she doesn't get too upset or frustrated if she can't stand so well.

My sister Jen and I had a nice talk tonight. We have had so many people around all the time it was nice for the two of us to just finally have a few minutes alone. She is doing OK - but she is the most sensitive of all of us and I worry about her the most.

Jay is still here and he doesn't leave her bedside unless he is told to step out for procedures, etc. I don't think he will go far as long as she is here. He has been very supportive.

Christopher and Olivia are with their dad for now until we know more about their mommy. We keep praying.

Time for rest for Stephi's family! Keep fighting Stephi!!!!