I am grateful to report that therapy went well. I just got the news. I am in Wittenberg waiting to go back to work tomorrow (I really wish I was there with her now). Steph has been up in the chair today, and she walks around her room with the help of her therapy team. I was told that she can stand and support her weight pretty well but needs some help on the left side. She is also having a lot of trouble with her fine motor skills (pinching, etc) I am so proud of her and to hear this news brings more tears (happy ones this time), especially for the girl who had so many strikes against her in the beginning.
She continues to need her NG tube and she anxiously awaits the day it can come out (I can't blame her). Thick liquids for Steph - Yuck! We will have to wait on the carrot cake - but when she ready I see that I have a team of people that are ready to bring her some. Thanks guys - you are the best!
My sister Jen is home sick today :( I still worry about her and hope she can finally get some rest. She is the ultra sensitive spirit in our family and this has been hard on her. Get well Jen - we love you too!
If there is one lesson to be learned it is that we may not always be ready for some of the things life throws at us. Stephi is only 26. Our family has been faced with making decisions on her behalf that most people only start to think about making later in life. How do we resuscitate? Do we resuscitate? What happens to the kids? I hope everyone has thought about what your own wishes would be and how you would want the future of you children to play out. I know I will now! People keep telling me that God will never give you more than you can handle. Why does he trust me so much??
I love reading all of your comments - Steph will too one day! To all of our friends at St. Clare's - we love you and I will see you tomorrow at work where I am fully prepared to be bombarded with a million questions and maybe a few tears - but take it easy on me. I'm teaching Neonatal Resuscitation tomorrow and I will need a little bit of a game face on :) I will be having a hard time knowing that my sister should be there with me wearing the green scrubs too. I'm sure you are all feeling the same way.
Family - wow - we have been blessed with family support. Stephi is a lucky girl in many ways!
Keep fighting Stephanie!!
Subscribe to:
Post Comments (Atom)
8 comments:
Thank you so much. You have no idea what it means to those of us that can't be there to be able to watch her progress here. Thanks to this I worry a little less everyday. Katie and Addie and I are hoping to make it back to see her yet this week. We left our numbers with Jay. Call if you guys need anything.
Thanks for putting this blog together. I have had off since that night and was VERY anxious to get to work (didn't think I'd ever say that) and find out anything on Stephs' condition. Thanks again Sara. Prayers, peace and good wishes to everyone.
Wade
One step at a time Steph, you can do this. Love you!!!
Yea Steph!
We are all so proud of you! You are helping us see how amazing you are! We all love you, and are always thinking about you. No worries girl for your carrot cake, you deserve the biggest one ever! Thanks for making our day!
Love Georgette
I'm so excited to get back up there and see how Steph is doing. She's a fighter! I pray for her everyday, and also think so much about her family. Thanks, Sara for keeping us updated...you are a wonderful big sister. Steph is very lucky!
Thank you so much for sharing and keeping everyone update on Stephanie’s progress. This is pretty cool stuff. Stay strong Stephanie and keep fighting.You will remain in our thoughts and prayers.
Sara, if you ever need someone to ride with you to keep you awake let me know:-)
Sara - This blog is wonderful!! It is such a relief to hear that Stephi is doing so well - she is a fighter. I can not imagine what a relief it is for you and your family to see the progress that she is making. The power of prayer is amazing! You and Stephi are in my thoughts and prayers - take care of yourself Sara, Stephi is in good hands. Keep fighting Stephi!
Its amazing to hear how she is doing! I wish I could be up there... but I've been sick for since Saturday... Nothing in life has ever been harder than sitting there waiting for the news about her. Listening to the doctors come in and talk to us as if she wouldn't make it. No feeling could possibly be worse. I'd rather break my back another 1000 times than to ever feel the way I felt during those 11-12 hours Of not knowing what to expect. Thank God....Love You Steph!
Post a Comment